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Jackson's Heart
.:::..:...... .::::
Jessica [userpic]

The little guy is looking lots better.  We went to see him yesterday and he was pretty sleepy.  He would wake up a couple times and look at us when we talked to him.  Of course, he paid more attention to Molly than us, but that's ok. 
They have been feeding him, but they stopped that late Friday night.  His stomach was more bloated than usual and the stool was pretty black.  That usually represents old blood, so they have to keep an eye on him for that also now.  They ran some tests and nothing came back that we need to worry about. 
The plan is now to do the trach sometime on Monday.  They won't do it if he is still showing any signs of being sick with anything.  It will be a pretty simple procedure only lasting around 30 minutes.  Knowing his history with things they deem "simple", we are a little concerned.  I know it's negative to think that way, but what can you do.  I voiced that to his doctor yesterday and she kind of agreed.  He's given them such a hard time down there also with all the setbacks.
These are supposed to be some of the smartest people in the state and when they don't know what to do anymore or look worn out, it makes you worry.  This is the one thing they think can save Jackson, so it is definitely worth the shot.  It will make him better though, no matter what happens from this point.
Take care and please continue thinking of Jackson.
Jake and Sara

*Side note from Jessica*
I did a little research on the trach, to get some more details and information for myself, and came across this website, if anyone else wants to read about it:

Good Luck!

Good luck with the upcoming procedure! You have many people praying hard for Jackson and your family right now.
Take Care


Keep fighting Jackson!! You're in our thoughts often and have many people praying for you.

Full of prayers

Sara and Jake,

Good luck with the procedure, maybe Jackson will surprise you and truly make this procedure a simple one! Our thoughts and prayers are with you!



If you have any trach questions feel free to find a 4 West nurse!! I do homecare on the side for a trach patient...unfortunately you guys live to far away!! Praying for Jackson!! Praying that this is a simple, easy procedure for him! See you soon! Hope

Jackson's Trach and Progress

Hello, my name is Erin and I live in West Texas, I have 2 kiddos who both have trachs, it's not as scary as it looks and they are easy to care for, We have nursing for my son who has more problems physically but not mentally. My daughter is almost 8 and is getting her trach out this summer...If there's anything i can do, my e mail is Thomasclan99@sbcglobal.net....Ya'll are in our prayers!

The Thomas Family

Praying for you Jackson

I really hope all goes well and that everything will be all right. May God be with him and your family blessing him. :)