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Jackson's Heart
jacksonsheart
.:::..:...... .::::
Jessica [userpic]
Crossroads

~~If anyone would like to leave a message/prayer, you can do so by clicking on "leave a comment" at the top of the entry.  You *do not* need to have a LiveJournal account to do so~~

Hello,
Sara and I had a long day with Jackson.  We went to visit with him in the morning before the heart cath was done.  He was actually pretty alert and we were able to get a couple half smiles out of him.  He really likes to suck on those fingers. 
 
They finally came to get him for the procedure at 2.  This lasted for about 3 hours, so we decided to go to some bumming around Milwaukee.  His room was empty when we got back.  The nurse came in and said that he was on his way back but he still had the breathing tube in(we planned on that one).  Then they decided they could take it out which was a pleasant suprise.
 
We then talked with Dr. Lamers.  He told us that they did have to balloon the pulmonary artery again.  Thinking good so far.  Then he tells us that they found that Jackson blood vessels draining from his head down into a vessel straight to the heart which leaves the blood not oxygenated.  They could plug the vessels, but this would add extra work to the heart.  He proceeded to tell us that he feels they are out of options with Jackson.  He and some other doctors will be meeting tonight and tomorrow to see what they can do....if anything.  They will also be consulting a transplant team, though he might not be a canidate for a transplant due to his lung, kidney and liver functions.
 
I asked him "Basically what you are telling us, is that you can't do anything for him anymore?".  He hesitated before answering "I don't know".  That is what the team is going to try and figure out.  They need to decide if any other surgeries will benefit him or not. 
 
This isn't something they could of found out sooner.  I think with him growing and getting older, all this stuff is presenting itself.  It was always there, just too small to notice.
 
The walk out of the hospital and the drive home was the longest ever.  We both had little periods of  crying.  We are both pretty much at a lost right now.  We don't want to leave the hospital tomorrow without any answers.
 
We told Molly what was going on.  Told her that her little brother is still very sick and that he may not  be coming home.  She's sad and i'm sure very confused.  As unfair as it is for Sara and I to deal with all of this, it has to be so much more difficult for a 5 year old to understand.  She has been so great with everything else we have thrown at her.
 
Once again thanks to all of you for the support and prayers.  We need some sort of miracle tonight and we need the doctors to put all of there collective college diplomas to good use.
 
Not sure where we will be the next couple days but we will find a way to keep you all up to date.
 
Thank you
Jake and Sara

Current Mood: numbnumb
Comments
(Anonymous)
Lots of prayers

Sara and Jake,

Again, we are thinking about you, and have you in our thoughts and prayers. You 2 are a very strong unit, and your courage and strength is remarkable! The love that you have for Molly and Jackson is overflowing. I am certain that Jackson can feel the love that surrounds him. He knows all of the support that is there! We will say many many prayers for all of you!

(Anonymous)
Lots of prayers

I forgot to sign the above comment,

Love,

Dennis and Becky

(Anonymous)

Prayers for Jackson, Jake, Sara, and Molly. :( I'm so sorry to hear this.
=*Leighanna*=

(Anonymous)
Hoping for the best

Jake and Sara-
My prayers are with you and I am hoping for the best. Hopefully there is another miracle for little Jackson! I will keep you in my thoughts and prayers.
-Holly

(Anonymous)
You are SO STRONG!!!

Hi, my name is Angie and a friend of your's had posted a bulletin about Jackson and I read it. I am new to learning about CHD. I have a 9 month old daughter, and she is my first child. I have often thought I was a strong woman, but I can't IMAGINE what it feels like to go through what you both are going through, and then your 5 year old daughter! I don't think I could find the strength! I guess I just wanted y'all to know how strong I think you both are, and that I will be praying for Jackson...lots! I know God has a plan for everything, and I've always believed everything happens for a reason but why God would put a son in your arms to love for such a sort period and then take him back home must be one of the HARDEST things to deal with, and of course leave you without questioning the reason.

May God Give You Comfort,

Angie

(Anonymous)

Jackson's heart is breaking mine. I pray that with Gods guidance the Doctors are able to find the miracle that we would all like for Jackson. If there is a way for him to live a long, healthy and happy life, I'm sure that with Jackson's strength, our prayers and God's love, that miracles really can happen. Best wishes for unending happiness.

(Anonymous)

I am so saddened by this news. I wil keep Jackson and his family in my thoughts and prayers. I especially know how difficult all of this is and so many times questions why these little ones need to suffer so much. I guess that someday I might find an answer but it has been a question that I have struggled with for the past almost 25 years. It is very scarry but will pray that God is there to take care of all of them and their families.
Karen

(Anonymous)

My heart aches for what you are having to go through. I pray that God helps to comfort you and continues to make you strong for this battle you are facing. My thoughts and prayers are with you.
-Christi

(Anonymous)
Sara and Jake

I just read what you posted and I'm SO SORRY to hear the news. Josh and I will both pray for Jackson and your family.
Take Care,
Stacy

(Anonymous)
Praying for your Family!

I don't know you and you don't know me but I will be praying for your family. I read your bulletin after a friend of mine posted it on her myspace page. Her daughter also is a CHD child. I will pray for healing of your wonderful Jackson. I will pray for God to lay his hands on you for guided strength and your wife and may God bless you with words of wisdom to share with your other children. God bless!

Amy Emert
Knoxville, TN

(Anonymous)

My heart is breaking for you. I am praying for your family.

(Anonymous)
Sorry to hear

I just wanted to leave a message for you guys, I am a friend of Jessica's and have heard all about Jackson, I wanted to say that my thoughts and prayers go out to you and your family. BEST WISHES!!! Natalie Furzland

(Anonymous)
thinking of you all

Jake, Sara, Molly and Jackson,
As you know, you guys are always in my thoughts and prayers. Just wanted to let you know that if you need anything, please let me know.
Love to all of you,
Aunt Sue

(Anonymous)
Jackson in my thoughts and prayers

I read about Jackson in myspace, all my thoughts, and prayers are with you.
Doni

(Anonymous)

I read your bulletin and I'm sorry to hear about Jackson. I'll be praying for Jackson, and all of you guys, I hope all goes well.

Kristin

(Anonymous)
Prayers from a stranger, too

I dont know you guys but my heart goes out to you! I pray that you will recieve the miracle you are counting on and that the doctors have answers for you.

May you find peace in Him~
Lisa Day
Lubbock, TX

(Anonymous)

As long as there are miracles there is hope! I pray for continued strenght and courage for you both and Molly. As well as a silver lining for Jackson.
So many people praying for all of you, well wishes, supporting you, loving you all and a little baby many have never met.

Jackson has sure brought a world of people together.
All my love
Jenny B (Auntie)

(Anonymous)

Your entire story has made me remember how my sister always ends her letters to my children. Each one of them is signed:

And until we meet again, may Gold hold you in the loving cradle of His hands, my precious angel.

I am sure I cannot say anything that hasn't already been said, but maybe those words can offer you a small amount of comfort for your precious little boy. I wish you all the best, and I will have your family in my prayers. :-)

Patrica Atkinson

(Anonymous)
i'll be praying

I will be praying that little jackson gets through this all. Jake and Sara you along with Molly will all be in my prayers as well, just remember to never give up hope. God will be with you all.

(Anonymous)
Prayers from strangers

I know you don't know me, but please know that there are people all across the US praying for your family today. My heart aches for you and I know what you are going through as my daughter also has a CHD. May God bless your family.

(Anonymous)

Sara, Jake, Jackson, and Molly, (Gramma and Grampa Baucknecht too)

You have been in my thoughts always. When I found out at work today about Jackson I was saddened. You guys, especially Jackson, are in my prayers and I am sure that all the people at St. Mary's are praying for you also. Take care of yourselves.

Love,
Mary B

(Anonymous)
Praying For You

I am praying for your little one everyday.
Jenni

(Anonymous)

I am so sorry to hear that Jackson is not doing as good as he could be. We have been praying for Jackson every night. I am hoping that he is improving. Your family is always in our prayers, Beth Rebekah and Azaliah