I also hope that Erin, Heart Girl, had a good time and felt successful in her "mission" in coming to Jackson's benefit. I am awaiting her blog about the benefit, but after talking to her for hours last night after the benefit, it sounds like she did. She was able to help Jackson's family and friends feel that there really is hope for Jackson to live a long time, that it is possible for a baby with congenital heart defects to live a full life. And I hope that we, as a group, were able to help her in return, in realizing that there are other people out there that want to make everyone aware of CHDs and what is possible for people with them, that we need to get some research done and provide support for people with CHDs, like Jackson as he grows up, and even for his sister Molly, for her important role in Jackson's life, and of course, for parents of CHD babies and children, like Jake and Sara.
I fell asleep almost as soon as I got home tonight (had to go pick up our dog at my in-laws' house), and just woke up about an hour ago, I did want to get something posted tonight and upload the pictures I have. Please, if you have any pictures, email them to me at firstname.lastname@example.org
Benefit pictures are HERE
I will be working on the video this week, I am not yet sure how to get it on the internet in it's full length, but I will be doing some research into that. (If anyone knows how to do that, any help would be greatly appreciated.) Even if I have to cut it up into big pieces, like Erin's speech as one and then the rest as another. But MySpace and YouTube only allow video files sized 100mb or less. I don't think the clips I can cut out now will be that small...
Anyways, I am off to bed now, if you have any thoughts about the benefit, if you attended and want to share your experience or a story, please do so by clicking on "leave a comment" at the top of this entry.
Once again, THANK YOU so much to everyone, whether you helped by working, buying raffle tickets, shirts, bracelets, auction items, food, or even just by attending. All of that, is greatly appreciated.
Before I sign off, I would like to share a story that happened to me after the benefit, while we were cleaning up. We had one table left to get rid of, the registration table. Seven Lakes had begun serving dinner by then, so there were people in the restaurant that hadn't been at the benefit. A gentleman came up to me and inquired
"Can I ask, who is Jackson?"
I replied that Jackson is a baby with a heart defect and gave him a little background about Jackson and what he has gone through in his 7 months of life so far.
He then asked, "What is his prognosis?"
I explained a little about the 3 surgery treatment, and how the hope is that by rerouting the blood through the right side of the heart, he has hope of living a full life.
He asked what we had been doing there today, and I told him about the benefit, and how all of Jackson's family and friends have decided to help Jackson's parents by showing our support, both mentally and financially.
Then, he asked what my red bracelet says, and I showed him the "Pray for Jackson" imprinted on it.
He asked if he could get some, and I told him of course he can, all they cost is a donation to Jackson's Heart Fund.
He then proceeded to the table to buy 2 of the bracelets.
Before I left, I handed him one of the cards with Jackson's web site on it, and he said he would be checking it out and following Jackson's progress.
I hope he has, and I hope he reads this, and I really hope he knows how much that simple gesture means to so many people. Having just one more person in Jackson's corner is a wonderful thing, and I hope he reads Jackson's story and sees the strength that Jackson has and is inspired by it. I know I have been.
Thank you again, so much, from the bottom of my heart, and from all of Jackson's "Heart Team"